Paul’s Story

Paul was born with a very rare condition Sjogren-Larsson Syndrome meaning he cannot stand or walk, he uses a hoist system for transfers with the help of 2 carers and has driven a powered wheelchair since he was 5. Paul uses a voice output communication aid that is attached to his wheelchair and is currently studying for a Laser qualification in Learning, Employability and Progression which has given him more opportunities to socialise with his peers and go on days out like “wet wheels” where he and his friends went out on a boat together.

Paul is now 21 and will leave college next year and is hoping to become more independent with the support of carers. However, his wheelchair did not have the ability to support sit to stand or change position meaning he missed out on many socialising opportunities and his independence was hindered.

Independence at Home was able to provide funding towards a Permobil Wheelchair and Paul’s mum said “It’s absolutely amazing and he’s so excited. It’s wonderful how he can now see and do things that have always been out of his reach before, looking out of the window, seeing himself in mirrors and opening cupboard doors. It’s surreal to see him moving around in an upright position. It’s given him such a boost after months of shielding and so much greater access to independence in education and at home”.